Flux Health Forum

Update on Fibromyalgia and PBM

This is an update from a previous post. Back in March, I was researching use of photobiomodulation to help with FM. I have a friend for whom I bought an M1 but it has not helped with his Parkinson, so in my search for other solutions for PD, stumbled on the blogs of Dr. Catherine Hamilton’s redlightsonthebrain, read PBM also helps FM in addition to PD so after extensive research, chomped down and ($2000 USD) bought her transcrainial PBM hat, nasal insert and PBM tummy wrap to treat my FM and my mother’s post stroke.

My FM has produced fibro flares that can be very severe at times varying on a scale of 6-9 (10 being the worst pain). First day of use, didn’t experience anything different. Second day, wow, huge change. One major symptom of FM is pain that occurs throughout the body in fibro flares that can be very unpredictable and affect mobility. The pain has decreased not only in frequency but also in intensity. Whereas previously, the pain was constant, now it appears maybe once or twice a day and is more mildly irritating rather than so intense that it immobilizes me and I can’t leave my bed. On average about 85% improvement is my guess.

The biggest symptom with FM for me, however, is the inability for my brain to manufacture the sleep hormone melatonin. FM people don’t handle stress very well, and the last several months have been months of anxiety and stress, that there were days I would manage 1-3 hours of sleep, but within the second day of use of the PBM device, I’ve been averaging 6-7 hours of sleep.

Chronic fatigue syndrome (CFS) another symptom also improved, though not as dramatically as the other two. Same for stress, anxiety, and depression, though perhaps to a lesser degree — I still sleep with the M1 at night to treat my depression.

Mind, PBM is not a cure for FM but using it twice daily after meals, it’s been like night and day for me. The devices are very pricey and I’ve been told I would have to use it regularly for the rest of my life… but well worth the investment for its many health benefits. It’s been 20+ years since I’ve stopped training in tai chi qigong martial arts because of the growing FM disability, but recently started training again. Blood pressure was fluctuating, sometimes sky high because of inability to sleep, but has now normalized after the fourth day of doing qigong again.

Now, I’ve finally convinced my PD friend to invest his hard earned money on ordering a PBM set for his Parkinson’s, as lately his tremors have gotten worse. When he uses the M1 coils on his head, the tremors and stiffness are gone, but once he removes the coils, they come right back. I have great hopes that regular use of the PBM will help.

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Awesome update, that’s really promising that you are seeing so much FM symptom improvement from PBM.

One additional idea for your friend with PD is to use a vial of IG and also insulin in a Kurve Therapeutics intranasal atomizer that delivers the immunoglobulins and separately the insulin past the blood brain barrier. It is not necessary to be in a clinical trial to get a doc to prescribe it and the IG medicine and self experiment.
Multiple clinical trials for Alzheimer’s and PD and the anecdotal results were amazing from what I heard. https://kurvetx.com/clinical-trials/

Thank you for the information. The issue for my friend is that he is on a limited budget. I paid for the M1 for him as a Christmas gift, but most of the therapies available to him — hyperbaric chamber, vagus nerve stimulation, TMS… they all add up to huge costs and they’re not for a permanent fix and he’s unable to maintain long term.

We live in Canada, and from my understanding this technology is available only in the States right now. :disappointed:

My best hope is the PBM for him – while it’s pricey, studies have shown the best result if he can keep at it every day. His PD is considered in the early stages and slow progressing, so there’s a good chance if he uses PBM regularly, it could stop the disease from progressing and reverse some of the symptoms. Drugs work only for a short while before they stop working altogether – that’s what happened to my dad. Unfortunately for my dad, his PD was very aggressive and after 5 years, he entered into 4th stage even when doctors increased his dosage and then he literally starved to death when his jaw locked and he could no longer eat. We felt so helpless watching him die in horrible pain over three months in palliative care.