Flux Health Forum

ME, CFS, POTS, dysautonomia, myalgic encephalomyelitis

I’ve found such a relief of symptoms with PEMF for my ME(myalgic encephalomyelitis). I was hoping we could see if Im an outlier or if PEMF is indeed a valuable way of relieving symptoms associated with ME, CFS, POTS, dysautonomia, neuropathy, sleep issues, pain, etc.

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Crittercherub, which body areas have you treated to get these effects?

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This is a very interesting topic. The way that PEMF reduces inflammation, differently from NSAIDs or other known pharmacologics, seems to get directly to underlying causes of many diseases. By my rough back-of-the-envelope calculations, PEMF should be able to have very beneficial effects on at least 40% of the number of disease conditions currently treatable by modern mainstream medicine. But that could easily be closer to 100%, my calculations were very conservative. And also note: many, perhaps most, of the conditions where PEMF seems to be very beneficial are not the same conditions for which mainstream medicine has effective treatments. For example, there may be as many as 250 “diseases of aging”, currently unresponsive to mainstream medicine, that may respond very well to PEMF. When you start to consider numbers like this, you start to realize that the widespread use of PEMF has the potential to expand the number of medical treatments again by half, or may even double the number of diseases that we can currently treat.

That, of course, would require a sea change in mainstream medical practice (and awareness). I predict that entire medical professions would be created, while others are nearly entirely displaced.

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I began treating myalgic encephalomyelitis(18 years of illness and 8 years of housebound) with a full body mat.
I had to start out low and build up slowly.
I was finally able to sleep on the full body mat(not nearly the gauss the M1 provides) and it helped increase my sleep time and quality.

A few months in my neuropathy that had me staggering around like a very elderly person, decreased to where I don’t feel pain at all in my feet. My numbness in my legs and thighs has also decreased in major ways. The numbness and pins and needles is now a sign I use to know that I need to rest and pace.

My neck pain and headaches are so much more manageable and the M1 is a great addition. It enables me to have inflammation relief without having to be on the mat.

I use the M1 on my head, neck, stomach, liver, lymph nodes(when I’m pushing detox too much and in pain)mouth for gum issues and hoping to regrow some bone under teeth.

I also use it when I know my inflammation is causing depression. I rarely suffer from situational depression so the M1 goes straight to the inflammation and Alpha above my ear near my temple(site of TMS stimulation in conventional medicine) has been helpful.

Im hoping to hear more experiences from others.

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Great topic! I have a MAS machine, and I was using it for up to 45 minutes a day at frequencies of 30 Hz up to 1,000 Hz. For the first couple weeks, I felt super energized. But over time, I felt depleted.

I must have used it at too high a frequency for too long and kind of burned myself out. So, I’ve been taking a break the last couple months. I wish I had some protocol I could follow.

I have always had concerns about physiological habituation to PEMF. After all, cells and tissues will eventually tend to tune out monotonic signals. So, for the last 10 years I have been sure to design every pulse pattern to include changes that will reduce or eliminate physiologic habituation to ICES-PEMF

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Crittercherub-I loved reading your relief in symptoms. I also have POTS. Being treated for mast cell activation was a huge help. But now my brother has ME and POTS as well, due to Lyme. May I ask with the M1-how many hours a day and on which setting?

I just saw this post, apologies for the delay in responding. In general, I find it best to use the M1 or A9 for as long as possible every day, 6 to 8 hours or more is best.

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Crittercherub could you please tell me the mat you used when you started to work on your dysautonomia. My 14 year old daughter has chronic pain and dysautonomia and I am wondering if that would help her but I don’t know which one to buy.

Hi Kayrem
I use the bio-balance and sleep on it.

I also use the M1 on my neck since it is a higher intensity unit.

Im not sure your daughters issue but looking at the MEIC Primer would be a good investment. You can find it at ME-International.org

I would love to find out if more people with myalgic encephalomyelitis benefited from PEMF as it’s been such a good investment in sleep improvement, pain decrease and almost eliminating neuropathy.

I’m happy to discuss my experience. [quote=“Kayrem, post:9, topic:869, full:true”]
Crittercherub could you please tell me the mat you used when you started to work on your dysautonomia. My 14 year old daughter has chronic pain and dysautonomia and I am wondering if that would help her but I don’t know which one to buy.
[/quote]

Me-international.org

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I’m a new user of PEMF with long Covid (moderate-severe ME/CFS type; I know there’s lots of scientific discussion about the etiology of these), POTS, histamine intolerance. I’ve had a ton of muscle/joint pain since getting long Covid 2 years ago, to the point where it’s difficult for me to lift a laptop or a kettle of water.

I’ve only had the P9 device (thanks @Bob!) for maybe 2-3 weeks. Followed some of the advice on this forum and started with 2-3 hours on level 2. Every day I would up the intensity by 1 level. This Monday I finally got up to 8 and have felt profound symptom relief. I really rarely write about the products I try, but I feel SO much better it’s crazy. Nothing I’ve tried before worked as well as this.

Things it has helped with:

  • Simply being able to stay standing and WALKING for extended periods - I was only able to walk 1-2 blocks, very slowly, had to avoid public transit because of all the walking and stairs. I was able to commute to work on public transit today, there AND back, instead of paying for cabs.

  • Mental and physical energy - I’m an academic. Today I had a 6 hour workshop and, while I was tired at the end of the day, it was a far cry from the absolute depletion I felt doing something this grueling before.

  • Acute muscle pain

I don’t think I am “cured,” I wouldn’t go back to the gym right now, for example. But I went from being able to do 1-2 hours of work to extending myself to 4-6 hours—without feeling a crash the next few days like I normally would.

Unlike some others with ME/CFS here, I seem to be able to tolerate PEMF well, no side effects from going 8+ hours at level 8-9. I’m in my mid-30s, female, fair eating habits (I get veg every day now, but I don’t have energy to cook so it’s all takeout or catering).

Before long Covid, I was extremely physically active, had been an avid weightlifter in early 20s and could bike across hilly terrain for 90 minutes, no problem. I used to go clubbing for 12+ hours, which I really miss. Seemed like I had endless capacity for work. Of course, this was in my 20s and I think part of my body’s limitations now are just aging.

I finished my PhD right before I got long Covid—it was extremely traumatic for my body and mind, and I suspect that is why my body went haywire after the infection.

It’s fascinating to me. Based on the mechanisms of action discussed in this paper, it makes a lot of sense that PEMF is helping me with my symptoms—calcium and potassium channels (which I know ketamine and agmatine also act on, both of which have helped me—ketamine helps but I’m usually super tired for two days after), cell apoptosis, cell proliferation and differentiation. I started upping my time using PEMF because of this tidbit: “Interestingly, PEMF does not seem to give rise to a dose response pattern, as PEMF, by itself, does not elicit clear apoptotic behavior or biological effects on malignant cells.”

I used stacked coils at C7/T1, right around where my neck meets my spine, based on this paper suggesting it targets stellate ganglion block to reboot ANS.

I’m on day 5 of increased capacity without a crash as of yet but I’m worried I will rebound somehow. Of course, I’m going to rest this weekend and still pace myself.

Is this wishful thinking that there might be a light at the end of the tunnel? For people who saw improvement with PEMF, did you ever experience a crash or disease regression after an extended period of improvement?

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Hello,

THIS is interesting! C1/T1 is a hot-spot for major meridians making the connection from up to down and down to up. If there is a blockage “things go not as usual”. I did treat exactly the same point with several energetic/frequency things, even tuning forks.

If its not “physical damage” it seems to me, that it can be also (real) trauma (my fear, grieve/loss, basically “unsolved issues”). Think of a physical node for issues “one level up”, like with acupuncture points. PEMF, especially ICES PEMF with its very focused intensity on a small area (dB/dt), seems to interact, on another wave based physical level which is hard to describe (-> scalar?, torsion-fields?) with something positively there.

I do not know what other decisions you may have taken and won’t go into it. But one issue that seems to be detrimental is EMF, especially all digital modulated wireless (2/3/4/5G, WLAN, Bluetooth, etc.) + microwave oven + induction cooking + internet over the powerline.

Best,
Hans

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Hi!
I have Post Covid with very severe ME/CFS. Since mid December I am completely bedridden mainly due to heavy muscle weakness and also somehow inflamed toes and ankles. I get PEM from the slightest movements or actually all thinkable „stressors“ - which can be everything. (Not moaning, just explaining)
Nerve pain, stuck lymphatic system, microclotting, blue toes, dysautonomia, gut issues, MCAS, some Pots issues, adrenal issues (not producing enough cortisol but needing and taking way too much because of the state I am currently in) and for sure more, because brain fog too.

So, I stumbled over PEMF. Tried to research but found more questions than answers.
I‘d really love to try it but I have no idea which device. The Bemer Pro mat is either good (they also talk about improving microcirculation) or has good marketing, as they always pop up.
I also read the paper about using PEMF in the area C7/T1, which I‘d love to try.

A full mat seems practical. But which? And then are also the frequencies and probably a lot more which I haven’t even found out yet I‘d need to consider. I am also pretty sensitive and like to go slow and low.

Can anyone help? It should be available in Germany.

Sorry for the long text and thanks in advance!
Karin

Also @jeta
I actually have Long Covid. I worked with a brain health specialist when I was at my worst who introduced me to PEMF and AVE (I highly recommend the David devices from Mindalive https://mindalive.org/pages/products) both of which provided me with almost immediate improvement thorugh weekly sessions. I invested in my own devices for daily use, and I firmly believe that they were instrumental in my “recovery”.
Those with LC know that that word is loose, as we will never be who/how we once were. But I went from barely making it through a day and mostly nonfunctional to fully functional and occasionally able to enjoy an almost full day.
My brain function is back to “normal” from testing well below normal, but not fully back to the far above average I once was and while I still tire more easily than I used to, I can work for short periods in the yard, haul wood, exercise, etc.
I was lucky enough to be able to afford a BEMER system, which is what my brain health specialist used on me. In conjunction with the AVE and supplements (well researched and limited to only the ones that worked for ME), I truly believe it is part of what saved me. I also use the spot devices that came with the system, which have kept me from having surgery for a very bad bunion and Morton’s neuroma, as well as recovering from a bad sprain, in conjunction with only wearing well-padded, flat shoes.
I also invested in one of Bob’s devices, which helped some with anxiety and depression. Your posts make me wonder if I should try your placement to see if it is more effective than the ones I was trying to target my brain.
I will say that another thing that had a HUGE impact on my recovery was going on HRT. For both of you (and anyone else with Long Covid) if you haven’t had a full hormone panel, I encourage you to do so, even if you are young. LC is known to mess with hormones, tanking levels for many people. I had virtually none when I was tested, including things like testosterone which even women need to have some of. My ex-husband also had almost no hormones. HRT worked wonders for both of us in our recoveries.
As for crashes: I still get them after 4 plus years, BUT they aren’t nearly as bad and don’t last as long. The trick for me is to realize when one is coming and STOP. If I keep pushing mentally, physically or emotionally, the crash will be much worse than if I just say, “I’m done” and stop for the day or give myself a day off to rest. I also recover more fully, when for a while any illness or major stress cycled me right back to where I started from. As you know, that is terrifying!
I will say, for me, I never got WORSE after the initial horror when I realized my brain and body quite simply did not WORK any more. But there are definitely forward and backward phases. And when I feel good, I still need to remind myself not to push, because then I will trigger one of my relapses. The brain fog, PEM, weakness, etc. return and I have to go back to all of my treatments again.
I have also noticed that if I stop using the PEMF and AVE, I will have relapses, so I truly don’t think “cured” is even a word in my vocabulary. Recovered to a large degree? Yes. Miles better than I was? Absolutely.
I wish you both the best!