Hello. So glad to find a forum. I have POTS, Mast Cell Activation and mild EDS type 3. According to the doctors at NIH, these diagnoses have been now tied to a genetic condition called Hereditary Alpha Tryptasemia, unfortunately, it’s now causing autoimmune attacks on my organs in the B and T cells, making for a lazy gallbladder. I have been able to get some relief from sips of cold brew coffee and lemonade to stimulate the gallbladder, but the high histamines in the drinks are hard on me. My doctor wants me to hold off as long as possible for surgery until the pandemic can slow down since I’m high risk for travelling and so forth. But the issue is I can’t handle a tens unit, as it makes me have myoclonic seizures or muscle jerks. It looks and sounds worse than it is. So I’m not sure I can handle too much of the PEMF’s. I seem to do well with baby doses of everything. I did handle just five minutes of Infrared sauna, which made me feel weird, but better the next day.
Here are the strange but true electrical experiences. I had some type of test 15 years ago. They put electrodes on trying to search for trouble with circulation and electricity due to spinal and disc issues causing some dead nerves. I don’t know the name of the test, but this sounds very far fetched, but they could not get a reading on me, so they used the machine to test two doctors and the receptionist to see what happened when they turned it up to 3 and they had a big reaction. They tried it on me again and slowly had to turn it up to the highest possible number, and it blew out the lights and something with the fuse. I remember hearing a pop and I felt nothing on any side of my body. I can tell you, this is not true for anything else, I have so much pain. They concluded that I had possibly been struck by lightning or electrocuted. I can tell you that’s never happened. Needless to say, the test didn’t work and they charged my insurance company $16,000. I watched others take the test and when they turned it up, it made their muscles react at just 2, so I don’t know why I could feel nothing at 10. But yet I can’t handle a tens unit.
Also, my brother is a contractor and he put two copper wires near me that he uses to find wires and instead of long wires turning in as they did on him, they turned away from me very quickly. I’m sure that’s common, but he said it wasn’t right. So would I be okay using an electrical machine?
I know this all sounds bizarre, but much about my body just doesn’t make sense. But I do okay for the shape I’m in and I have literally tried diligently most diets, exercise and lifestyle changes, which I believe has kept me doing better than most with my condition. I’m very hopeful to keep trying to find a better way. Hoping this can help me a little bit. I’ve been researching for quite a while and am ready to try.
Thanks for listening.